Welcome to Live & Learn Episode 11. In this episode, Fiona Wardman shares her journey with hereditary angioedema (HAE), highlighting challenges faced by children such as delayed diagnosis, school absences, stress triggers, and mental health issues. She emphasises that modern therapies enable patients to lead normal lives and advocates for increased awareness and support to help affected students fully participate in school and social activities.
HAE is a rare genetic disorder causing recurrent severe swelling in various parts of the body. HAE Australasia is a patient advocacy organisation dedicated to improving the lives of those affected by HAE through support, education, resources, raising awareness within the medical community and the public, and advocating for access to effective treatments and care.
View transcript here.
