Welcome to Live & Learn Episode 10. In this episode Megan speaks with Stephanie Quattromani, Executive Manager of Services, Policy and Research at CF Together, who sheds light on the challenges and resilience of children living with cystic fibrosis (CF). Stephanie discusses the significant treatment burden of CF and addresses misconceptions. The interview emphasises the educational challenges students with CF face, and the critical role of technology and supportive policies to enhance quality of life and learning.
Cystic Fibrosis (CF) is a genetic condition that affects the respiratory and digestive systems. CF Together is an Australian organisation that supports individuals and families impacted by CF. They provide advocacy, support services, education, and fund research initiatives to improve treatments and work towards a cure, aiming to enhance quality of life for those living with CF.
View transcript here.
