Welcome to Live & Learn Episode 41. This week Megan Gilmour speaks with Allison Cooke, ambassador for the Peace of Mind Foundation and mother to Emily, who lives with a low-grade brain stem ganglioglioma. Allison shares her family’s experience of delayed diagnosis, the hidden long-term impacts of childhood brain cancer, and why flexible school support and connection matter so much for children and families navigating treatment and survivorship.
Brain stem gliomas are tumours that affect the brainstem and can disrupt vital functions such as swallowing, balance and movement. The Peace of Mind Foundation is a not-for-profit organisation providing practical, emotional and financial support to brain cancer patients, their carers, family and loved ones.