Megan left her career in international and community development in 2010 when her 10-year-old son became critically ill, and his teenage sister was struggling with the way life had changed. As Megan witnessed her son’s painful and long separation from his friends and learning, she made a commitment to changing the way schools see their responsibility to kids facing serious illness. The barriers Megan encountered in trying to keep her son connected to his school fuel this commitment, as does an appreciation of the basic rights of access, equity and education for all. She believes that learning and belonging offer us dignity, now, and hope in a future. Megan is passionate about seeing the experience of families and the voice of sick kids move to the forefront in shaping ways for continuous school connection. She hopes for the possibility of joining this to the collective wisdom of educators and health professionals for partnerships that make a difference in the lives of sick kids. Megan is the co-author of Australian-first research, School Connection for Seriously Sick Kids : Who Are They, How Do We Know What Works, and Whose Job Is It? She is a 2016 Churchill Fellow for study on overseas education system models of maintaining school connection for these students.
Megan comes to MissingSchool through her lived experiences as a parent of young people with chronic and terminal illness, and as a classroom teacher. While her children were in high school, Megan realised that her family’s experiences of the educational, social and emotional impacts of missing school could not possibly be happening in isolation. This realisation drove her to complete a Masters in Inclusive Education, and to research her PhD in the area. That research investigates the impact of video conferencing on motivation and engagement for students with chronic illness. Megan has taught in mainstream secondary educational settings and in Teacher Education at her local university, and in her local Hospital School. Megan passionately believes that connection to school is critical for all children and young people, and that access to the classroom for those battling serious illness is crucial in maintaining that connection. Megan is Australian Research Alliance for Children and Youth lead researcher on education and health sector practice for school connection for seriously sick kids. This research is the result of MissingSchool's advocacy and is the first ever Australian Government-funded study on this subject.
Cathy has two children, her younger child is a survivor of childhood cancer. Cathy became interested in learning issues resulting from cancer therapy, after her son had a cord blood transplant in 2005 and a second transplant in 2010 for relapsed Acute Lymphoblastic Leukeamia. After her son’s first transplant Cathy joined a US listserv for cancer parents and became more aware of the lack of services for children in the Australian setting. Cathy met Gina and Megan as their children were treated at the same centre in Sydney. The three decided to form MissingSchool in 2012, recognising that there was no clear pathway or voice for parents advocating for their child’s need for educational support and connection. Cathy is the co-author of Australian-first research, School Connection for Seriously Sick Kids : Who Are They, How Do We Know What Works, and Whose Job Is It?
Hugh is drawing on his experience in having supported his child through a life-threatening illness, and adding honours and postgraduate studies in law and governance to serve the objectives of MissingSchool. Inherent in Hugh’s personal experience is an understanding of the multiple burdens and stresses faced by families and carers in dealing with the serious medical circumstances of their child. In addition to the critical illness, there is care of the sick child’s siblings, grief and trauma, strain on relationships, geographic relocation, financial hardship, personal health issues, and so on. He sees a continuing relationship with the school community as critical to maintaining some kind of “normal” for kids and families in circumstances of serious illness. Hugh believes that we can achieve better outcomes if everyone upholds their part.
Gina’s background is in science management, but her interest turned to teaching after her children started school. In 2008, Gina’s son was diagnosed with a critical and life-threatening illness which kept him in and out of hospital – and out of school – for around 18 months. During this period, although she was no longer working, Gina preserved her sanity by maintaining her volunteer involvement in her children’s classrooms. When her son’s health stabilised, she made a career change and moved full-time into education. She now works as a classroom teacher, and is firmly committed to ensuring that the needs of all students are met, even when they can not attend school. Gina is proud to be a founding member of MissingSchool, but dreams of a day when all kids with serious health conditions receive full support from their schools as a matter of course and the Association can be wound up. Gina is the co-author of Australian-first research, School Connection for Seriously Sick Kids : Who Are They, How Do We Know What Works, and Whose Job Is It?
Mia is currently doing a degree in Medical Science, hoping to pursue paediatric medicine or medical research. She became drawn to MissingSchool through both her career aspirations and personal experience. When Mia was 13 her brother became critically ill. While supporting her brother through his illness, she witnesses the vast social, physical and emotional challenges he faced, while facing some of her own. At this time she was in-between schools, attending both her high school and hospital school, eventually moving to a school close to her brother’s treatment. She was greatly affected by watching her brother experience the many difficulties that come with missing school. In her medical career she hopes to create awareness surrounding the social, emotional and mental consequences of illness that can often be overlooked. Mia plays an administrative role within MissingSchool, helping with campaigns, social media and other odd jobs. She does this in the hope that even the smallest contribution to an amazing cause will help her and MissingSchool change the lives of sick kids for the better.