The Association of Pediatric Hematology Oncology Education Specialists (APHOES). APHOES addresses the educational needs of pediatric hematology and oncology patients. APHOES membership is inclusive of a wide range of disciplines such as nursing, psychology, social work, child life, school and hospital-based education, and medicine.
Australian Child and Adolescent Trauma, Loss and Grief Network (ACATLGN). ACATLGN brings together up to date, evidence based information and resources that can be used to understand the impact of trauma, loss and grief experiences on children and young people, and how to best help those young people who have been affected.
Australian Research Alliance for Children and Young People (ARACY). ARACY progress and promote evidence-based programs and strategies to improve the wellbeing of children and youth. By collaborating with researchers, policymakers and practitioners, ARACY turns ‘what works’ into practical, preventative action.
Bandaides and Blackboards. Home to lots of pages about what it’s like to grow up with some type of medical problem that doesn’t go away and how to help when chronic illness or some other medical problem goes to school.
Behavioural Sciences Unit, Sydney Children’s Hospital Kids Cancer Centre. The Behavioural Sciences Unit at the Kids Cancer Centre, Sydney Children’s Hospital, is a leading paediatric psycho-oncology research unit dedicated to improving the lives of childhood cancer patients and their families.
Brain Tumour Alliance Australia (BTAA). BTAA is the only national brain tumour patient and caregiver organisation in Australia. It was established in late 2008 by a group of brain tumour patients and current and former caregivers. While welcoming the advice and input of specialists, BTAA seeks to represent the brain tumour community from the viewpoint of the patient, family and caregiver.
Children’s Healthcare Australasia (CHA). CHA’s vision is to enhance the health and wellbeing of children and young people through supporting children’s hospitals and health services to achieve excellence in clinical care.
Ped-Onc Resource Center, Back to School. Children with cancer often experience disruptions in their education due to repeated hospitalisations, side effects from chemotherapy, or generally not feeling well enough to fully participate in daily school life. As their health improves and treatment allows, returning to school can be either a relief or a challenge for children with cancer. This site provides insight, hints and tips for helping that process.
Rare Voices Australia (RVA). RVA is Australia’s national organisation advocating for those who live with a rare disease. RVA provides a strong common voice to promote for health policy and a healthcare system that works for those with rare diseases. RVA works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare diseases in Australia. We are the voice of 2 million plus people affected by rare diseases throughout Australia and 70 million globally.
Ronald McDonald Learning Program. A national program run by Ronald McDonald House Charities, assisting children experiencing serious illness to catch up on their learning.
Ronald McDonald House Charities. RMHC has a wide range of programs to help seriously ill children and their families across Australia, all focused on making the journey to recovery as easy as possible.
Siblings Australia. Committed to improving the support available for siblings of children and adults with chronic conditions including disability, chronic illness and mental health issues. Siblings are still largely overlooked at the policy/government level and so Siblings Australia advocates for more awareness and support.