A comprehensive report into the challenges facing kids who miss school due to significant injury or illness aims to improve outcomes for an estimated 60,000 seriously ill Australian students. Go here to find the report – School Connection For Seriously Sick Kids: who are they, how do we know what works and whose job is it? – released on 12 October, 2015, at Parliament House Canberra.
In an earlier blog post, we mentioned Megan Jackson’s research into how schools can use apps like Skype and FaceTime to keep adolescents with chronic illness connected back to their classroom. Megan is now hoping to hear from people who can comment on how schools might be able to work better to support adolescents with chronic illness, and you can access her online survey here to have your say.
In late 2013, PhD candidate Megan Jackson presented her confirmation seminar at the University of Canberra. In it she described her examination of the potential for linking students with serious chronic illness to their classes and teachers using real-time Voice Over Internet Protocols (VOIP).
Parents of sick kids should carefully consider their child’s individual needs. It’s not that easy to work out what they will be, especially if you’re dealing with a new diagnosis. They might be about absence, mobility, medication, fatigue, pain, nausea (among others) – or they might be emotional, or social. They are all valid.
This is the first in a series of hints and tips for parents and carers engaging with schools in circumstances of serious illness or disability of a child in their care. As a regular series, we will offer practical strategies to deal with every-day type challenges encountered in the school setting in these circumstances.
When we have a child with, or diagnosed with, a critical and/or chronic medical condition it is generally very confronting. Words like “devastating, shocking, frightening, taxing” may better describe the experience. Our first concern is to focus on our child’s health. Their survival, wellbeing, happiness and the management of the illness becomes our natural priority. It consumes our energy, emotions and often, our financial resources. But somewhere in all of this, the question of “What about school?” will probably arise.
The Calwell, Curtin, Jerrabomberra, and Wanniassa Community Bank® branches (Bendigo Bank) are delighted to advise that Missing School has been successfully nominated to receive a 100 Community Heroes Grant. The grant, worth $1000, will enable MissingSchool to run an event in the ACT for families, educators, health practitioners and researchers — hopefully the first of many around Australia — called “Keeping Seriously Sick Kids Connected”. The 100 Community Heroes Campaign is a way of showing support for community groups like MissingSchool who are out there making a difference every day. MissingSchool will attend a ceremony on Wednesday, 24 July, 2013 to accept the grant. A big thank you from MissingSchool to Calwell, Curtin, Jerrabomberra, and Wanniassa Community Bank® branches for recognising the importance of keeping seriously sick kids connected to their school communities.
Prior to our 2013 Annual General Meeting, MissingSchool is holding a small consultation process to help inform our planning. It will be in Canberra, on Wednesday 26 June from 1.00-3.00 pm. We are inviting people who have useful and informed perspectives to contribute. To join us, call 0400 241 900, or email Cathy Nell. Invitees include: ACT Council of Parents and Citizens ACT Education and Training Directorate ACT Health Association of Parents and Friends of ACT Australian Catholic University Australian Child & Adolescent Trauma, Loss and Grief Network (Australian National University) Australian Research Alliance for Children & Youth Canberra Hospital School Centre for Research and Action in Public Health, University of Canberra Children’s Healthcare Australasia Families ACT Independent Schools Council of Australia MissingSchool management committee and members Parent Support Group, Catholic Education Office Parents and carers of seriously sick kids Pediatrics Staff at the Canberra Hospital People who work with seriously sick kids Ronald McDonald Learning Program and Pathways Project Sydney Children’s Hospital (Kids Cancer Centre & Behavioural Sciences Unit) University of Canberra